Six mothers gathered for ten weeks to share and write about their lives, families, experiences and especially their journeys with their children who have cerebral palsy.
Their writings have been turned into a theater production. "Fierce Love" is authentic riveting, and inspiring. These mothers share their hopes, life truths, and admit their biggest fears in their messy, broken, and brilliantly beautiful lives.
Directed by Erica Terpening-Romeo and Heath Hyun Houghton
Facilitated by Heath Hyun Houghton and Erica Terpening-Romeo
The 16th Family Conference on Cerebral Palsy and Developmental
Disabilities was a roaring success. Held October 24th and 25th
in Portland, nearly 150 parents, self-advocates, vendors, presenters,
and staff came together for two days of speakers, workshops, and
connections. The vendors were “generous with their time” and a
Our keynote speaker; Julie Keon shared “Ten Pearls of Wisdom
Gained in Ten Years” with the group. One mom wrote “it was a great
opening topic…allowed me to connect, feel accepted, and that I was
among friends who share my struggle.” Another said that Julie’s words
went “straight to my heart.”
In addition, there were 14 workshops on such topics as
Low & High Tech Communication; Adaptive Play/Recreation;
Custom Orthotics; K Plan; Treatments for CP; Sibling Support; and
the usuals: Parents Panel; Growing Up with CP.
Here are some remarks from Julie’s afternoon workshop on
“how to stay resilient for the long haul”: “we have to make self-care
a priority, without making it an added stress”; “it takes a metropolis
to raise a child with medical fragility”; “we take 28,000 breaths a day;
if shallow, our body thinks we’re in an emergency”. She really focused
on the importance of deep breathing.
The Family Support Conference is held bi-annually (every other year).
Plans are already underway for our October 2016 conference.
If you missed this year’s, you want to be sure to attend the next one.
We are now accepting nominations for UCP’s 2014 Annual Meeting & Awards Banquet.
You can use use the link below to nominate people or companies in 8 categories: https://www.surveymonkey.com/s/V5B8ZXR or download and complete the attached pdf and complete the nomination offline.
The Nomination Categories are as follows:
Anyone can make a nomination, so feel free to share this link with customers, families, Board members, partners, providers, Personal Agent/Service Coordinators, etc. and encourage them to nominate someone. UCP Managers will select award winners from amongst the nominees.
Don’t delay, the nomination deadline is 11:45pm Wednesday, September 24th.
Wow! Another great Walk, Roll ‘n’ Run has passed, and once again, we were delighted with the turnout.
We wish to extend a special "thank you" to all the employees and other volunteers who served on the planning committee, volunteered to help at the event, and who formed team, joined teams, and did fundraising. Thanks to your hard work, at least $98,000 has been raised so far.
Donations are still being accepted through the end of the September; so please click here if you want to help us reach our final goal of raising $100,000. We are so close!
We are excited to announce that UCP has once again been named as one of the 100 Best Nonprofits to Work for in Oregon for 2014!
We achieved this designation based on our employees’ responses to an annual survey adminstered by Oregon Business magazine, as well as our benefits package. We have achieved this designation 5 times now: in 2009, 2010, 2012, 2013 & 2014.
We will learn where exactly we placed during an awards ceremony on October 1st.
Thanks to all the wonderful employees who made this designation possible! You are truly what makes UCP great.
On Saturday, August 2nd, one of the people supported by UCP's supported living services, Jeff, went to the Great Oregon Steam-Up in Brooks, Oregon.
Jeff was able to attend with a little assistance from his caseload manager, Sue. Together, they had a great time looking at the old tractors, engines and a sawmill. They learned about the different steam engines and how they worked
Jeff enjoyed talking with the old-timers there about their tractors. He got to watch as corn was ground into cornmeal, and later purchased a 5 lb bag of freshly ground cornmeal--we suspect there will be a whole lot of cornbread in Jeff's future!
Best of all, Jeff got to see a "Ferguson" tractor, which is the same kind of tractor that he rode with his dad when he was young and living on their farm.
As you may know, UCP presents Annual Awards to individuals, groups, and companies who have made a significant impact on the UCP community.
This year, we are redesigning our awards program, and we would love your input, whether you receive UCP services, work for UCP, or partner with us in some other way.
You can participate by visiting this link (which will take you to a very brief survey). Thanks for your help!
We look forward to presenting our revised awards at this year’s Annual Meeting on Friday, October 24, 2014 during the Family Support Conference at the Embassy Suites Portland Airport.
This year we will be celebrating 10 years of the Walk, Roll 'n' Run! We are excitedly planning for this momentous day and hope you can join us!
It is always a wonderful day spent with family, friends and the community as we raise awareness and the funds needed for the Family Support Department here at UCP.
Register at www.walkrollnrun.org to sign up, form a team, join a team or support an individual! We have a big goal of $100,000 to meet for our 10th year and every bit helps!
We are always looking for wonderful sponsors, to help to make this fun and meaningful day in the community special for all. If you know of a business that would like to join our list of sponsors and help us reach our fundraising goal, have them view the sponsor packet by clicking here or email Kerry Pinney, Development Coordinater at for more information.
Watch the new video to see the fun had by all over the last 9 years and don’t be left out of the fun as we celebrate 10 years of the Walk, Roll ‘n’ Run!
Want To Find Out More?
As you may know, UCP is often called a “one stop shop” for adults who experience developmental disabilities because we operate an adult support services brokerage, adult employment services, adult inclusive recreation, and adult independent living services.
Now, UCP is excited to announce that we are expanding our supports to include in-home services for children who experience developmental disabilities and are funded through the K Plan.
To get our new Children's Services off the ground, UCP is hiring a Children's Supports Manager.
The Children’s Services Manager will be reponsible for evaluating and monitoring service needs, analyzing administrative rules and developing compliant policies, marketing the new service, managing contracts, hiring and managing direct support employees, liaising with families, and providing quality assurance.
To find out more about this exciting new position, go here.
This year we are asking for YOU to design the 2014 Walk, Roll 'n' Run t-shirt! See complete details for the t-shirt design contest by clicking on the pdf below. There is a $100 gift certificate in it for the winner along with the joy of seeing your design on hundreds of people around town!
Submissions Due - Friday, March 14th!
Neighborhood Waves is busy exploring all that Milwaukie has to offer during February and March! There are lots of fun shops, historic homes, sculpture art and tours to be had. A tour of Dark Horse Comics is set for February and in March we will be getting the behind the scenes look at Bob’s Red Mill!
A special "thank you" to the businesses that are welcoming the people we support and helping to make "A Community for Everyone". Make sure to check out the coupon good for participating Milwaukie businesses and give them some support!
Participating businesses include:
• Animal House Pets & Supplies
• Clackamas Book Exchange
• Cha Cha Cha!
• Spring Creek Coffee House
• Dark Horse Comics
• Bob’s Red Mill
• Wind Horse Coffe & Tea
• Pietro's Pizza
• Dusty Tiger Antiques & Toys
Get the latest updates from our explorers on our Facebook page: www.facebook.com/ucpaorwa
With a new program that just started at Fred Meyer, you can now link your Fred Meyer Rewards Card to United Cerebral Palsy of Oregon & SW Washington and start earning donations for UCP with each swipe!
It is easy to do and you still will be receiving your rewards like usual each month.
This is a separate donation that Fred Meyer has agreed to do for the charities of their customers choice!
So, visit www.fredmeyer.com/communityrewards today and get your card linked!
You can search for us by name or enter our non-profit #91421. Complete instructions can be found in the pdf below.
UCP’s Family Support Department provides all kinds of support to parents who are raising a child with cerebral palsy (and rare disabilities that mimic CP), such as information and referral, support groups, and overnight respite from caregiving.
But one of the most important things we do is help parents connect with other parents. One of the ways parents connect is through our “Let’s Connect” program, which UCP runs with funding assistance from the Developmental Disability Service offices in Clackamas and Multnomah counties.
Here’s how Let’s Connect works: throughout the year, parents can attend trainings on a variety of useful topics. Attendees will learn a lot, and get the chance to connect with other parents who are interested in the same topic.
If you missed the 2013 trainings, we have good news for you! In 2014, we will once again be hosting a full roster of trainings in Clackamas County. We are collecting suggestions for training topics from county service coordinators and parents. If you’d like to suggest topics for the trainings, please contact us by .
Along with the trainings, the 2014 Let’s Connect program will also feature several family outings, including the extremely popular roller skating day and a summer picnic. Stay tuned to learn more details!
Meal time a challenge?
UCP will be holding a workshop which will explore the nature of picky eating for children, teens, and adults who experience disabilities. The nationally known speaker, Joan Medlen, will share strategies and a tiny bit of science to reduce stress at mealtime. The training will be held November 7th from 6:30pm to 8:00pm in Clackamas. Learn more here.
This training is the last training of 2013’s Let’s Connect Series. Let’s Connect is a vibrant collaboration between UCP Family Support and the Clackamas and Multnomah Developmental Disability Service offices, and combines trainings, outings and the sharing of useful information.
Find out more about UCP's Family Support Department here.
UCP is pleased to announce that UCP ranked as #14 among large employers on the 2013 list of the 100 Best Nonprofits to Work For in Oregon. The study was coordinated by Oregon Business.
To watch a video about some of the winners (including UCP!),click here.Special thanks to Beatrice Williams and Emil Khooda for agreeing to be the "face" of UCP in the video.
I am pleased to announce that as of this morning with contributions that will continue to be received until the end of the month, the 9th Annual Walk, Roll ‘n’ Run has raised over $87,500! What an amazing demonstration of employee and community support. It was a beautiful morning and inspiring experience and we look forward to next year as we continue to “Engage, Inspire, and Connect.”
As you might remember, back in April, UCP announced an exciting partnership with Lawyers Title. Between April and June, every time a transaction closed, Lawyers Title set aside a portion to donate to UCP.
Today, we got to find out just how much had been raised when we received a large and exciting check for $11,333, which will be used as a Platinum Sponsorship for this year's Walk, Roll ‘n’ Run. This significant contribution has helped us be even closer to our event goal of raising $80,000!
Lawyers Title has also formed a Walk, Roll ‘n’ Run team, which will be made up of interested employees and others in their network.
Thanks to Lawyers Title for all of their support! This company is truly assisting UCP to further our message of “Engage, inspire, and connect”.
Learn more about Lawyers Title here.
Learn more about the Walk, Roll 'n' Run here.
We are pleased to announce that UCP's support services brokerage, UCP Connections, is growing.
We are currently recruiting for two new Personal Agents, who will provide case management supports to a caseload of up to 45 adults with developmental disabilities.
If this sounds like something that might interest you, please see the job ad here.
UCP's community garden plot (located in Hazelwood Community Gardens) is in full swing. Lots of people we support (and employees!) love to visit, taking a little time to pull a few weeds, plant, or water.
This year, they will be in the company of UCP's new scarecrow. The scarecrow was created by some of our very creative Choices Support Specialists.
Thanks, and we look forward to seeing you there!